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Hearts & Minds - Information for ChangeSM
Parkinson's
Disease, Prosthetics, and Technology links
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On this web page:
PARKINSON'S DISEASE
PROSTHETICS
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TECHNOLOGIES
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PARKINSON'S DISEASE
National Parkinson's Foundation, Inc. (NPF)
Bob Hope Parkinson Research Center
1501 NW 9th Avenue
Bob Hope Road
Miami, Florida 33136-1494
Phone:
1-305-547-6666 or
1-800-327-4545
E-mail: mailbox@parkinson.org
Website: www.parkinson.org
"The National Parkinson's Foundation works
to improve the quality of life for both patients and their caregivers. It [works] to find
cause and cure for Parkinson's disease and related neuro-degenerative disorders through
research... Educates general medical practitioners to detect the early warning signs of
Parkinson's disease... Educates patients, caregivers, and the general public... Provides
diagnostic and therapeutic services..." The NPF has
offices nationwide.
The NPF website has
information on how to help and information about Parkinson's disease along with
the latest
news and events. The site also has a variety of tests that should be helpful to those who
think they may have symptoms of the disease.
Parkinson's Disease Foundation, Inc.
William Black Medical Building
Columbia-Presbyterian Medical Center
710 West 168th Street
New York, NY 10032
Phone: 212-923-4700 or
1-800-457-6676
E-mail: info@pdf.org
Website: www.pdf.org
"The Parkinson's Disease Foundation is a
national, non-profit organization, dedicated to supporting and promoting the
highest-quality research world-wide into the cause(s) and cure of Parkinson's disease, and
for better symptomatic treatments. It also offers referrals to support groups, clinical
neurologists specializing in the diagnosis and treatment of PD symptoms, and to a wide
variety of non-profit and for-profit resources available to PWPs and their families
nation-wide."
This site provides plenty of information
about Parkinson's disease and the organization. The captioned links are helpful.
Parkinson's Care
710 West 168th Street, Third Floor
New York, NY 10032
E-mail: pdcohen@parkinsonscare.org
Website: www.parkinsoncare.org/
"The goal of
the program on Quality, Access and Delivery of Parkinson's Care is to improve the quality
of life of persons with Parkinson's Disease (PWP) by improving the
availability of effective treatments and supportive services to patients and families."
The Parkinson's Care site has a site
contents section that allows for easy navigation. The site has an overview of what the
organization intends to do and useful links.
PROSTHETICS
Institute of Biomedical Engineering
University of New Brunswick
PO BOX 4400
25 Dineen Drive
Fredericton NB E3B 5A3
CANADA
Information contact: Robert Caldwell, Manager
Phone: 1-506-453-4966
E-mail: biomed@unb.ca
Website: www.unb.ca/biomed/
"The Institute of Biomedical
Engineering provides services to people with upper extremity limb loss for more than 14
years. Due to its link with research and development in myo-electric controls, this
service has grown to be the second largest in Canada providing powered prostheses. In
1995, research expanded to offer a program for selected individuals with lower extremity
limb loss."
This site has a wealth of information right
on the homepage.
Prosthetics Outreach
Foundation (POF)
726 Broadway, Suite 306
Seattle, WA 98122
Phone: 1-206-726-1636
E-mail: pofsea2@aol.com
Website: www.pofsea.org
"The Prosthetics Outreach Foundation is
a nonprofit medical service organization that provides high quality prostheses
(artificial limbs) to amputees in urgent need in developing countries and in the United
States."
The POF website provides information on the
organization and how to donate. The site also contains a photo gallery and related links.
TECHNOLOGIES
Abledata
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
Phone: 1-800-227-0216
E-mail: adaigle@aol.com
Website: www.abledata.com/
"Abledata is a federally funded project, the primary mission
of which is
to provide information on assistive technology and rehabilitation equipment available from
domestic and international sources to consumers, organizations, professionals, and
caregivers within the United States."
The Abledata website offers resources in forms of literature
and articles. This site also has related links.
Adapted Computer Technologies
(ACT)
16 Gingham St.
Trabuco Canyon, CA 92679
Phone: 1-949-459-5241
E-mail: ddutton@compuaccess.com
Website:
www.compuaccess.com
"ACT specializes in systems integration and
training in computer assisted devices for all individuals with disabilities,
rehabilitation/vocational counselors, and employers of persons with disabilities."
The ACT website contains info about helping to
educate those with disabilities.
New York State Office
of Advocate for Persons with Disabilities
One Empire State Plaza, Suite 1001
Albany, New York 12223-1150
Phone: 1-518-473-4538 (voice only)
1-518-473-4231 (TTYonly)
1-800-522-4369 (Voice/TTY/Spanish-- NY state-only)
1-800-943-2323 (BBS-NY state-only)
E-mail: oapwdinfo@advoc4disabled.state.ny.us
Website: www.advoc4disabled.state.ny.us/
"The OAPwD works to ensure
that people with
disabilities have every opportunity to be productive and participating citizens through
full access to emerging technology. It [provides] up-to-date, comprehensive information on
programs and services for people with disabilities and their families. It also [works for]
implementation of progressive legislation protecting the equal rights of people with
disabilities...."
This is a text-based site with
information from publications.
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