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Hearts & Minds - Information for ChangeSM
Services,
Support, and Information for the Physically Challenged
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Notes: We will continue to
update and add more listings.
Groups listed below are for information only. Hearts and
Minds does not endorse or have an affiliation with them.
Additional notes and © copyright info. Not all groups listed run
self-help fellowship groups. If they do not, they can probably refer you.
Amputee
American Amputee
Foundation, Inc. (AAF)
PO Box 250218,
Little Rock, AR 72225
Phone: 1-501-666-2523
Book Information, referrals, and peer
support for amputees. Hospital visitation and counseling. Contains a magazine, group
development guidelines, and national resource directory for patients, families and caregivers.
Amputee
Coalition of America (ACA)
900 East Hill Ave. Suite 285
Knoxville, TN 37915
Phone:
1-865-524-8772 or
1-888-AMP-KNOW (1-888-267-5669)
E-mail: acainfo@amputee-coalition.org
Website: www.amputee-coalition.org/
"The Amputee Coalition of America (ACA) is
a national, non-profit amputee consumer educational organization representing people who
have experienced amputation or are born with limb differences. The ACA includes individual
amputees, amputee education and support groups, professionals, family members and
friends, agencies, and organizations."
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Amputee Resource
Foundation of America
6480 Wayzata Blvd.
Golden Valley, MN 55426
E-mail: info@amputeeresource.org
Website: www.amputeeresource.org
"It is our
mission to disseminate timely and useful information, to perform charitable services, and
to conduct research to enhance productivity and quality of life of amputees in America."
MossRehab ResourceNet
MossRehab Hospital
1200 West Tabor Road
Philadelphia, PA 19141
Phone: 1-800-CALL MOSS
E-mail: netstaff@mossresourcenet.org
Website: www.mossresourcenet.org/amputa.htm
"MossRehab, a modern, 152-bed facility, offers
comprehensive care to people with a broad range of conditions--including stroke, brain
injury, orthopedic and musculoskeletal disabilities, spinal cord dysfunction, pulmonary
disorders, amputations, and other forms of disability."
National Amputation
Foundation, Inc.
38-40 Church Street
Malverne, NY 11565
Phone:
1-516-887-3600
E-mail: amps76@aol.com
Website: www.nationalamputation.org
"The National
Amputation Foundation (NAF) was founded in 1919 to serve the needs of veteran and civilian
amputees. Services include the exchange of visits among amputees, legal counsel,
vocational guidance and placement, social activities, psychological aid, and distribution
of educational materials."
Caretakers'
Respite
National Respite Locator Service
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
Phone: 1-800-7-RELIEF or 1-800-773-5433)
E-mail: CHAR_SMITH@prodigy.net
Website: www.chtop.com/locator.htm
The National Respite Locator Service "helps
parents, caregivers, and professionals find respite services in their state and local
area. The service is also useful when a family travels or must move to another
state."
This site can help parents, caregivers, and
professionals find respite services in their state and local areas. Has links to all 50
states in the USA.
Facial
Disfigurement
About-face
Rickie Anderson
Executive Director
PO Box 458
Crystal Lake, IL 60014
Phone: 1-888-486-1209
E-mail: AboutFace2000@aol.com
Website: www.aboutface2000.org
About Face is "an international
organization dedicated to providing information, emotional support, and educational
programs to individuals who have a facial disfigurement and to their families."
This site contains a newsletter, information
and referrals, and assistance in starting local groups. Also an address in Canada.
Center for Cranio facial
Development and Disorders
Children's Medical and Surgical Center, Room 1004
The Johns Hopkins Hospital
600 North Wolfe Street
Baltimore, MD 21287
Phone: 1-410-614-9245
E-mail: omie@jhmi.edu
Website: omie.med.jhmi.edu/craniofacial/
"The Center for
Craniofacial Development and Disorders is an educational and interactive resource for
families, physicians, and researchers facing craniofacial developmental issues and to
inform the public about activities at our Center."
Children's
Craniofacial Association
PO Box 280297
Dallas, TX 75228
Phone: 1-972-994 9902 or 1-800-535-3643
E-mail: CHAR_SMITH@prodigy.net
Website: masterlink.com/children/
Children's Craniofacial Association is "a
nonprofit organization ... dedicated to improving the quality of life for facially
disfigured individuals and their families. Nationally and internationally, CCA addresses
the medical, financial, psychosocial, emotional, and educational concerns relating to
craniofacial conditions. CCA advocates on behalf of and promotes awareness for the
facially disfigured."
This site contains information on
craniofacial disorders in children as well as educational materials and doctor referrals.
FACES: The
National Association for the Craniofacially Handicapped
PO Box 11082
Chattanooga, TN 37401
Phone: 1-800-3 FACES 3 or 1-800-332-2373
E-mail: faces@faces-cranio.org
Website: www.faces-cranio.org
FACES is "a non-profit organization serving
children and adults throughout the United States with severe craniofacial deformities
resulting from birth defects, injuries, or disease. ... Our service goals address three
distinct areas: client travel, public awareness and understanding, and information and
support."
This site contains a newsletter and
referrals to group and treatment centers.
Forward Face
317 East 34th Street,
New York, NY 10016
Phone: 1-800-FWD-FACE or 1-212-684-5860
E-mail: npm1079@aol.com
Website: www.forwardface.org
"Forward Face is a national organization
for patients and families with craniofacial conditions."
Let's Face It
PO 29972
Bellingham, WA 98228-1972
Phone: 1-360-676-7325
E-mail: letsfaceit@faceit.org
Website: www.faceit.org/
"Lets Face It is a nonprofit
network that links people with facial disfigurement and all who care for them to resources
that can change their lives."
The site contains a resource list.
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